Services in Michigan

Adult Day Programs and Respite Care Resource List

Information, Referral & Assistance Services

• Alzheimer's
• Huntington's
• Parkinson's
• Lewy Body Disease
• Other dementia

Support Groups - Special dementia support groups are available in most counties in Michigan. Contact the Alzheimer's Association, Huntington's Disease Society or Parkinson's Foundation for more information about where and when support groups meet.

Education & Training - A directory of individuals and agencies in Michigan who provide dementia education and training programs for professionals and families. If you are looking for programs in your area, we suggest you contact one of the Information & Referral agencies above. However, you may view this directory for an idea of education and training providers.

• Developing Meaningful Connections with People with Dementia: A Training Manual (PDF). A CD/DVD is available. Please contact Marci Cameron for details (Email | 517-335-0226).

MISeniors - Sponsored by the Michigan Office of Services to the Aging, this site is the gateway to services available for seniors such as home care, counseling, legal assistance, education and training, employment, family and caregiver support, financial and income support, health care, long-term care, nutrition, prevention, protective services, housing programs, services for the homebound, and transportation. [ Learn More ]

Information

Lending Libraries - Special dementia libraries are available in most counties in Michigan. Contact the Alzheimer's Association, Huntington's Disease Society or Parkinson's Foundation for more information about resources available from the libraries and how to borrow them.

Prevalence Data / Support Groups / Lending Libraries - Find by country in Michigan.

Hospice Care for Persons with Dementia

• Key Definitions in Hospice Care (PDF)
• Hospice Eligibility Criteria for Persons with Dementia (PDF)
• Frequently Asked Questions about Hospice for Dementia Patients (PDF)

Caring Sheets: Thoughts and Suggestions for Caring Practical "how to" information on a variety of topics to make caring for someone with dementia more pleasant for both of you. (Link to Lansing Community College / will open in new window)

Resources for Those Whose Loved One Is in a Nursing Home

The Wayne State University Institute of Gerontology with assistance from Family Caregivers at DMC West Nursing Home (Southfield, MI) has compiled a series of "Helping Handbooks" to help those whose loved one is in a nursing home. Click on the links below to view or to download a copy (PDF).

• Taking Care of Yourself While Taking Care of a Loved One Who's in a Nursing Home
• Making the Most of Visits to Nursing Home Residents Who Have Dementia
• Living With Loss: When a Loved One Dies in a Nursing Home
• Mental Health and Nursing Home Residents
• Understanding and Dealing With Problem Behaviors in Nursing Home Residents
• Caregiver Data Resources (also listed below)

Caregivers Count
Data on Caregivers of Persons with Dementia

The following list provides resources on facts, figures, and statistics related to caregiving of persons with dementia. The Michigan Dementia Coalition provides these as useful and respected resources but does not verify data presented.

• The 2012 Alzheimer's Facts and Figures - Michigan. (PDF)
• The Alzheimer's prevalence data report for 2012 with information provided by county. (XLS)
• 2012 prevalence projections on all forms of dementia. (DOC)
• BRFSS (Behavioral Risk Factor Surveillance System)
  Annual, statewide telephone survey focuses on behaviors, medical conditions, and preventive health care practices related to the leading causes of mortality, morbidity and disability.
  www.michigan.gov/documents/mdch/MIBRFSS_Brief_Mar2010Caregiver_Vol1No2_FINAL_318064_7.pdf
  www.cdc.gov/chronicdisease/resources/publications/AAG/brfss.htm
  www.cdc.gov/brfss
• Caregiving in the U.S. 2009, National Alliance for Caregiving and AARP
  National portrait of family caregivers 2009 compared with caregivers in 1997 and 2004.
• Family Caregiver Alliance/National Center on Caregiving, Selected Caregiver Statistics
• Michigan Aging Information System, NAPIS Participant and Service Report, Office of Services to the Aging
  Counts and characteristics of participants, caregivers, services, expenditures, and service providers of service activities supported all or in part by Title III and Title VII of the Older Americans Act (OAA).
• New Estimates for number of people with Alzheimer's disease in Michigan and all counties using prevalence rates as published by Herbert et. al (2004) with US estimates of the population for Michigan and each county for 2008 by age groups [ Excel Spreadsheet ].

Family Caregiver Alliance - The Family Caregiver Alliance website offers a variety of resources and support for patients, caregivers and families of individuals with dementia and other related disorders.

(October 2008) Primary Care Dementia Network Physician Members

(June 2006) Michigan Survey of Cognitive Impairment and Dementia. View/download the PowerPoint presentation.

(July 2005) Legal Assistance Resources for Persons with Limited Financial Means - Compiled by the Michigan Dementia Coalition.

(Nov 2004) Respite Care Fact Sheet (PDF) What is respite care? What are the different types?

(August 2003) The Michigan Dementia Coalition and Michigan Department of Community Health released the Michigan Dementia Plan. Summary | Full Plan (PDFs)